Feb 20, 2009

Happy Friday! Kolton is gaining weight very easily now! Barring any set backs, he should have no difficulties making it to his surgery weight. He had a very busy Thursday with the ROP eye exam and 2 echocardiograms. There is some dilation of his vessels in the eye that they are calling Stage 1 ROP at this point. The likelihood that this will correct itself with age and the heart surgery is very great. He will have another eye exam next week. The 2 echos were to start prepping for his surgery. The cardiologist need to be very familiar with his anatomy and any other potential abnormalities prior to surgery. We should hear the results of those today.
Kangarooing with Kolton continues to go extremely well. It is the highlight of our day to be so close to him. He looks so perfect. He looks much more like a "normal" baby just in miniature size. He's actually getting cheeks. When he is awake, he is very alert and tracks our voices with his eyes.
Kyle and I were given a tour of the units he will be transferred to pre- and post- surgery. It made the heaviness of the situation very real. But, I think the tour will help us process and be prepared for the actual day. Not including prep time, the surgery itself will take 4 to 6 hours. Right now, we are just enjoying watching Kolton grow! Again we are reminded to just take one day at a time.
Much love to all,
Gretchen, Kyle, Tavyn & Kolton
(Naboo too - the dog)