Good Morning Dear Friends and Family! We like to start everyday thanking each of you for your constant and continued prayer. You are helping to heal our whole family. The postings from each of you are read and re-read, and it is truly keeping us going.
Kolton's biggest news is that all the chromosome testing came back normal!!! Sometimes, his heart condition is the result of DiGeorge Syndrome which is related to a deletion on chromosome 22. Aside from the normal karotype test a FISH for DiGeorge was also done. And it came back negative. We are of course thrilled with this news. Having DiGeorge would have meant the potential for a whole host of additional and potentially life threatening issues.
Kolton enjoys time on his belly. He is very strong and not real fond of the one remaining oxygen tube in his nose. He has a tendency to pull it out. What a joy to see a little bit of his personality coming out. Even though it's keeping his nurses on their toes. Although, when he cries and gets upset it is very difficult to not be able to scoop him up and comfort him.We should have an update soon from the cardiac team meeting about his heart surgeries.
We are not holding him on a regular basis yet as Tavyn is still sick. We do not want to spread anything to Kolton. We want the boys to learn to share of course, but not this. Germs they can keep to themselves.
Thanks again for your love and support!
Gretchen, Kyle, Tavyn & Kolton
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